The Mission
Your Lipedema Journey is dedicated to supporting women diagnosed with lipedema. We aim to simplify their journey through the complexities of diagnosis and treatment. Offering a compassionate space, we help women become their own advocates, providing resources, education, and community support. Our mission is rooted in understanding, empowerment, and connection, ensuring that no one feels alone in their experiences. Together, we can transform the navigation of this condition into a path of understanding and strength.
So why trust me? Fair question💜
My advocacy journey didn't start with lipedema — it started with my son. In 2020, during the height of the pandemic, my third baby was diagnosed with Coats' Disease and had his eye removed at just 18 months old. The day he went into surgery, I emailed a non-profit called Know the Glow and asked one question — how can I help another family from going through this?
That fire was lit. And it has not dimmed.
Since then, I've immersed myself in the medical world — speaking with doctors, scientists, and researchers. I've been invited to speak at Notre Dame University, present at Rochester's Flaum Eye Institute seminars, and sit as a roundtable guest alongside Harvard, John Hopkins and University of Michigan doctors and TED speakers on the topic of patient advocacy. Our story and advocacy work have been featured in newspapers and on television. I'm now a proud board member of Know the Glow and launched Beyond the Glow to help families navigate life after a rare eye disease diagnosis.
This work taught me something invaluable — how to research, how to ask the right questions, and more importantly, what those questions should be.
So when my own lipedema journey began in 2022, I didn't just Google and hope for the best. I did what I've always done — I dug in, organized, and built something to help others find their way.
This isn't just a passion project. This is who I am.
Change Lives Here
Support Women Together
At My Lipedema Journey, we strive to make a significant difference in the lives of women diagnosed with lipedema. Our community is dedicated to providing emotional support, valuable resources, and educational tools tailored to meet the unique challenges faced by these women. Through advocacy, shared experiences, and up-to-date information, we empower women to navigate their journeys with confidence and strength. Together, we can foster a stronger community that champions understanding, resiliency, and collective empowerment.